<![CDATA[Gawker: valleywag, Michael J. Fox Foundation]]> http://tags.gawker.com/assets/base/img/thumbs140x140/gawker.com.png <![CDATA[Gawker: valleywag, Michael J. Fox Foundation]]> http://gawker.com/tag/valleywag/michaeljfoxfoundation http://gawker.com/tag/valleywag/michaeljfoxfoundation <![CDATA[Google Founder Sacrifices Son, Last Shreds of Integrity to Science]]> Google cofounder Sergey Brin and wife Anne Wojcicki are so unconcerned with privacy that they're donating their newborn son's DNA to science. So surely they won't mind if we tell you the kid's name.

A tipster tells us that "for security reasons," Brin and his wife, who's the cofounder of genetics-testing startup 23andMe, have given their son the official name of Benji Wojin (a combination of "Wojcicki" and "Brin").

And sure enough, someone has privately registered the domain name benjiwojin.com. Of course, the legendarily bizarre Brin, who posted pictures of himself in drag, got married in a Speedo, and had guests show up in diapers to a baby shower.

Papa Brin is already putting his son to work as a test subject for mom's business, according to the New York Times, which reports that he plans to have Benji tested for Parkinson's disease:

Mr. Brin and Ms. Wojcicki said they would check whether their son, who was born in November, also has the mutation, though he will not be able to donate his DNA in the usual way - putting saliva in small tubes, as 23andMe has promoted at celebrity-studded "spit parties."
"Babies can't spit into a tube," Mr. Brin said.

The disease is genetic, and runs in Brin's family. His mother, Eugenia, already has developed it, and Brin announced last September that he runs a high risk of developing it himself.

So Brin announced on his blog that he is funding a study that will subsidize the cost of having people with Parkinson's get their DNA tested through 23andMe; they will pay $25 instead of $399, with Brin's grant, one presumes, making up the difference.

This is at once a noble contribution to science — and an outrageous case of nepotism that raises questions of tax evasion.

23andMe is backed financially by Google, which became an investor as it repaid a personal loan Brin made to the company. (Anne Wojcicki's sister, Susan, is also an executive at Google — a position she got after she served as the company's first landlord.)

Previously, Brin had contributed money to the Michael J. Fox Foundation, a prominent charity backed by the actor, who also suffers from Parkinson's. The Fox Foundation then went on to fund a Parkinson's study at 23andMe.

23andMe officially announced the study today — and confirmed that Brin himself provided the funding:

The initiative is made possible through funding by Google co-founder Sergey Brin. Mr. Brin's commitment comes from his personal interest in Parkinson's disease. Brin's mother has Parkinson's and he discovered through 23andMe that he has a genetic predisposition to the disease as well. He explained, "We can make significant progress in understanding Parkinson's disease if individuals join together and contribute their personal experiences to scientific research. Individually, our genes and experiences are lost in a sea of statistical noise. But, taken together they become a high power lens on our inner workings."

Mr. Brin's personal donation substantially underwrites the cost of genotyping the participants, who will pay only $25 compared with the usual commercial price of $399. Individuals who join through the PI and MJFF partnership will have the exact same data, information, tools, and access as individuals who have paid full price for the 23andMe Personal Genome Service.

Let's get this straight:

  • Brin is making a charitable donation, presumably tax-free, to the Fox Foundation.
  • The Fox Foundation is turning around and giving that money to 23andMe, a for-profit startup cofounded by Brin's wife and financially backed by Brin's company.
  • 23andMe will get to count the tests paid for by the charity as revenues, thereby pumping up its financial results, directly benefitting Google and Wojcicki.

We can all applaud Brin's contributions to science. But did he really need to go through what looks like a money-laundering scheme to make them?

(Photo via Edge.org)

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<![CDATA[Lazy Michael J. Fox discovered disease too late]]> If only Michael J. Fox, the actor and professional Parkinson's disease victim, had been an Internet genius like Google cofounder Sergey Brin, think of the good he might have done.

That's the outrageous statement that 23andMe cofounder Linda Avey made to Forbes in explaining the wonders of her genetic-testing startup, which she started with Anne Wojcicki, the wife of Brin, the Google gajillionaire. Here's what Avey said:

Sergey is going out and helping so many people. Michael J. Fox has done a lot with his foundation, but he did that after he was diagnosed. If you can find out early, you can do so much more.

Brin discovered through, yes, a genetic test that he is at risk of developing Parkinson's, as is the extremely wealthy child the pregnant Wojcicki is expected to bear at any moment. He's made significant donations to Parkinson's research — including a rather questionable one through the Michael J. Fox Foundation which was then directed to 23andMe.

What, exactly, does Avey think Fox should have done? Pursued a career in biotech instead of acting, so he might have developed a test for Parkinson's? And then what? Taken up smoking, a nasty habit which can nonetheless delay the onset of Parkinson's? Fox has raised millions of dollars for a Parkinson's cure — some of which went more or less directly into Avey's pocket. I'd like to know when 23andMe will detect a genetic propensity for ingratitude.

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<![CDATA[Google cofounder funnels money to wife's startup through Michael J. Fox charity]]> Google employees must avoid even the appearance of a conflict of interest, according to the company's code of conduct. But Sergey Brin is exempt from such bureaucratic trifles. The cofounder skirted ethical lines when he loaned money to 23andMe, a genetic-testing startup cofounded by his wife, Anne Wojcicki, and later had Google repay that loan in the course of investing in that company. The Google board's audit committee and CEO Eric Schmidt blithely signed off on the deal, however. Now, Brin has found a new way to route money to 23andMe, this time through a charity — thereby boosting, at least notionally, the value of Google's investment and his wife's net worth. Brin can claim it's all for a good cause, but the deal stinks to high heaven.

The donationBrin has a personal foundation, funded with some of his Google fortune. One of the largest recipients of his largesse is the Michael J. Fox Foundation, an organization founded by the Canadian actor and dedicated to researching Parkinson's disease, from which Fox suffers.

In May, 23andMe announced that it was signing up Parkinson's patients for its genetic-testing services. The tests would be paid for by a $600,000 grant from the Fox foundation.

Wojcicki described the approach in a Huffington Post op-ed as "Research 2.0." To our ears, this sounds more like a good old-fashioned back-scratching arrangement.

Here are the questions people ought to be asking: Was Brin's donation really a donation, since some of it ended up going into his wife's pockets? And should the Fox grant count as revenues for 23andMe, since the money can be traced back to Brin, the cofounder of Google, an important investor in the startup? If IRS and SEC officials don't start looking into the deals, then they're not doing their jobs.

How can Brin make this right, if he really believes in his company's code of conduct and the "don't be evil" culture he helped foster at Google? Google should immediately sell its shares in 23andMe, at cost. 23andMe should return the Fox grant. And the Michael J. Fox foundation should return Brin's donation.

Brin, whose net worth was recently estimated at $18.5 billion, can easily afford to invest personally in his wife's startup. And there's no conflict in doing so; he'd merely be seen as a supportive, if indulgent, spouse. The problem comes when he starts using other people's money to fund Wojcicki's ventures. Google shareholders shouldn't be funding her experiments; neither should the Michael J. Fox Foundation. Nor should U.S. taxpayers be footing the bill. Especially considering that 23andMe's tests may not even be legal, according to the state of California.

Google's success has persuaded Brin that he doesn't need to listen to other people's advice, or follow their petty little rules; his gut instincts have made him fabulously wealthy, so why should he? He may not have crossed any legal lines in this latest episode of self-dealing — but it shows that he's on a path to do so. Sergey, stop now, before you really embarrass yourself.

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